Children who need medically intensive care cannot attend traditional day care programs. California has an option for these kids, called Pediatric Day Health and Respite Care facilities.
But the amount the government pays these facilities to care for children has not kept pace with inflation and rising staffing costs. Because of the stagnant rates, California’s pediatric care facilities are in danger of closing.
Fetal Alcohol Spectrum Disorders are alcohol-related disorders thought to be the most common birth defects in the western world.
A recently passed California law should make it easier for children affected by these disorders to access special education services. The law goes into effect in January.
The state cut funding for social and recreational services for children with disabilities 13 years ago, which meant regional centers could no longer pay for summer camps, swimming lessons and other recreational programs for children with disabilities.
Now the centers have to figure out how to reinstate them, which has led to glitches for families trying to access these services.
The baby formula shortage wreaking havoc across the United States is terrifying for any parent who relies on infant formula to feed their child. It’s especially calamitous for babies and children with special health care needs who rely on special prescription formulas that have also been impacted by the supply shortage.
The shortage highlights an ongoing, systemic failure to ensure vulnerable children have secure access to medically necessary, life supporting products and equipment.
Parents of children with fragile, medically complex disabilities are expected to provide the same level of care during emergencies that intensive care units provide, but they’re expected to do it in the home.
The stakes are high: If you make a mistake, your child could die. That’s not a comforting thing to tell a new parent of a fragile baby.
California’s regional center system the system has struggled to provide services to Spanish-speaking families at the same rate it does to English-speaking ones.
Claudia Harty with Parents Helping Parents, a San Jose-based organization that works to connect families with services, shares ways to improve outreach to Latinx families of children with special health care needs.
Tens of thousands of California children with developmental delays aren’t diagnosed until they hit the school system. For children whose delays are detected late, the ramifications can be lifelong. That’s because interventions such as behavioral, physical and speech therapy are often most effective when started during the toddler years.
Billions of connections are made in a young child’s brain. Research shows between 85 and 90 percent of brain development occurs before a child turns 3.
Suppliers and parents began reporting shortages — most notably of ventilator circuits — early in the pandemic. Now, they say the problem is ongoing and kids are paying the price.
Based on national estimates, it’s likely that California is home to about 35,000 children with medical complexities, although no one tracks state-specific data. These are children with chronic conditions that require significant medical attention and specialized equipment, such as ventilators.
As COVID-19 disrupts the transition from early intervention to school, children are going without occupational, physical and speech therapies and other services they’re entitled to.
The danger, advocates for children with special needs said, is that these kids are missing out on interventions at a critical moment in their lives. Since mid-March, California’s complex special needs care system has struggled to move children from one program to another, parents and advocates said.