California’s regional center system the system has struggled to provide services to Spanish-speaking families at the same rate it does to English-speaking ones.
Claudia Harty with Parents Helping Parents, a San Jose-based organization that works to connect families with services, shares ways to improve outreach to Latinx families of children with special health care needs.
Since the death of George Floyd nine months ago prompted America to re-examine entrenched racism in all its institutions – from police departments to corporations and colleges – the child welfare system too, has had to reckon with its troubled past and deeply flawed present.
Driven by evidence that child welfare decision-makers judge parents of color more harshly and are more likely to remove their children, calls for systemic change have grown more urgent among parent advocates, scholars and even agency leaders.
Tens of thousands of California children with developmental delays aren’t diagnosed until they hit the school system. For children whose delays are detected late, the ramifications can be lifelong. That’s because interventions such as behavioral, physical and speech therapy are often most effective when started during the toddler years.
Billions of connections are made in a young child’s brain. Research shows between 85 and 90 percent of brain development occurs before a child turns 3.
After almost 10 months of staying home, some of these families have settled into the new reality and are receiving better support. Some have found creative ways to adapt. But others are still struggling to get their children the help they need.
How well families are doing depends a lot on their resources, both relational and financial. To help families that are struggling, lawmakers need to provide greater financial support such as stimulus payments, food subsidies and rental relief, advocates said.
While physical education might seem a low-level concern during the pandemic, health experts worry that the loss of access to exercise at school could widen health disparities among students.
Health disparities often stem from a lack of access to nutritious food, outdoor space and health care, among other resources. As a result of these societal inequities, low-income communities and communities of color often see higher rates of health issues, such as obesity and Type 2 diabetes. COVID-19 has shown how disparities can contribute to health outcomes.
Many parents of children with special needs — regardless of race — struggle to receive prompt diagnoses and services. But for families of color, the challenge is more acute.
“There’s just a lot of systemic racism,” said Kausha King, director of the Community Empowerment Project, a program that provides navigation support and training to Black families of children with special needs in Alameda and Contra Costa counties.
Suppliers and parents began reporting shortages — most notably of ventilator circuits — early in the pandemic. Now, they say the problem is ongoing and kids are paying the price.
Based on national estimates, it’s likely that California is home to about 35,000 children with medical complexities, although no one tracks state-specific data. These are children with chronic conditions that require significant medical attention and specialized equipment, such as ventilators.
To get services for their children, parents often must navigate a dizzying array of health care providers, special education entities and insurance programs, often with little support or guidance.
By the time these children receive treatment — which is often contingent upon getting a diagnosis — they may have missed out on a critical window of time during which interventions can be most effective.
As California launches widespread screening for adverse childhood experiences, critics question the science, and the consequences.
While few doubt that severe stress in childhood can lead to ailments later in life, tools used during doctors’ appointments are described in prominent scientific journals as inappropriate and unethical, oversimplifying human experience and straining doctor-patient trust.
Thousands of parents across California are caring for children with physical, behavioral and developmental conditions. They typically rely on a small army of teachers, therapists, nurses and other caregivers to get through the week. But that has been stripped away due to the COVID-19 pandemic.
Parents are feeling isolated, stressed and overwhelmed at a time when families need more support than ever to deal with a loss of routine, heightened anxiety and other challenges.