California has multiple programs that provide support to children with complex medical needs and disabilities. But accessing and making use of these programs is a minefield for many families.
Vivian Vasquez and John Hernandez discovered that for themselves after their daughter, Claire, was born with a rare genetic disorder.
California has a variety of programs aimed at supporting the health care needs of children with complex disabilities. But accessing and utilizing these programs is complicated and time consuming.
The California Health Report spoke with several experts and disability advocates about what can be done to ease the burden on families and ensure children with disabilities get the care they need.
A coalition of Latinx parents is suing Harbor Regional Center, alleging discrimination against Latinx children and adults with disabilities and demanding more services.
The lawsuit accuses the center of routinely dismissing Latinx families’ requests for help, of providing less comprehensive services than needed, and of burdening families with unnecessary requirements as well as failing to adequately inform them when services are canceled or changed.