disabilities

Analysis: We Can Talk About Abortion Without Being Ableist

I made the choice to continue a high-risk pregnancy, but I honor the choice of any pregnant person who opts to terminate given the same set of facts.

What I don’t like is seeing ableism — that is, prejudice against adults and children with disabilities — rolled into discussions about abortion, as has happened often since the U.S. Supreme Court overturned Roe v. Wade.

California Finally Pays for Summer Programs for Children with Disabilities, But Access Hurdles Remain  

The state cut funding for social and recreational services for children with disabilities 13 years ago, which meant regional centers could no longer pay for summer camps, swimming lessons and other recreational programs for children with disabilities.

Now the centers have to figure out how to reinstate them, which has led to glitches for families trying to access these services.

Analysis: The Formula Shortage Is Also A Disability Rights Issue

The baby formula shortage wreaking havoc across the United States is terrifying for any parent who relies on infant formula to feed their child. It’s especially calamitous for babies and children with special health care needs who rely on special prescription formulas that have also been impacted by the supply shortage.

The shortage highlights an ongoing, systemic failure to ensure vulnerable children have secure access to medically necessary, life supporting products and equipment.

For Children with Disabilities, Climate Change Brings Multiple Threats

Climate change is a growing threat to people with disabilities. Not only is the weather getting hotter, but Californians are facing more frequent wildfires, poor air quality, evacuations and power outages. These events are particularly difficult to navigate for people with complex medical conditions and those who care for them.

Yet, researchers and policymakers have historically overlooked this vulnerable population when it comes to emergency planning.

Analysis: Want a Mostly Normal School Year? Get Kids to Wear Masks!

We made the decision to send our son back to in-person school last year despite his vulnerability to infection because our district came up with a reasonable, safe plan to make it possible: Every student had to wear a mask.

Just as we were gearing up for a mostly safe year back at school, the Clovis Unified school board decided to snatch defeat from the jaws of victory and create unnecessary confusion over which mask policies would be enforced, despite clear state guidance.

Analysis: Care for Children with Disabilities Is Infrastructure, Too. Let’s Invest in it.

As federal and state policy makers make plans for infrastructure and budgetary spending, let’s not forget to invest in the infrastructure of care too, particularly for children with disabilities.

The framework of support that makes it possible for families to care for children with complex care needs safely, in their own homes and in their local school systems, is part of our infrastructure of care.

A young boy wearing a backpack, face mask, hoodie jacket, and rain boots, standing outdoors while its raining.

It May Be the Most Important Test of a Child’s Life. Most Aren’t Getting It

Tens of thousands of California children with developmental delays aren’t diagnosed until they hit the school system. For children whose delays are detected late, the ramifications can be lifelong. That’s because interventions such as behavioral, physical and speech therapy are often most effective when started during the toddler years.

Billions of connections are made in a young child’s brain. Research shows between 85 and 90 percent of brain development occurs before a child turns 3.

Parents Caring for Children with Disabilities Have Some Advice

After almost 10 months of staying home, some of these families have settled into the new reality and are receiving better support. Some have found creative ways to adapt. But others are still struggling to get their children the help they need.

How well families are doing depends a lot on their resources, both relational and financial. To help families that are struggling, lawmakers need to provide greater financial support such as stimulus payments, food subsidies and rental relief, advocates said.

Nakenya Allen outside her home in Martinez, California. Martin do Nascimento / Resolve Magazine

How Families Are Fighting Racism and Disability Discrimination

Many parents of children with special needs — regardless of race — struggle to receive prompt diagnoses and services. But for families of color, the challenge is more acute.

“There’s just a lot of systemic racism,” said Kausha King, director of the Community Empowerment Project, a program that provides navigation support and training to Black families of children with special needs in Alameda and Contra Costa counties.

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