children with special health care needs

Growing Up is Hard, Especially for People with Disabilities

For young adults with serious disabilities, the transition to adulthood is filled with challenges. In interviews with the California Health Report, young people and their families described the difficulties and triumphs they’ve experienced during this phase of life.

Overall, young adults with disabilities, their parents and advocates said too many families don’t know what to expect, or how to get the services they need. Health officials, regional centers, and school districts need to foster more awareness about what it’s like for these youth to transition to adulthood, they said.

Analysis: Care for Children with Disabilities Is Infrastructure, Too. Let’s Invest in it.

As federal and state policy makers make plans for infrastructure and budgetary spending, let’s not forget to invest in the infrastructure of care too, particularly for children with disabilities.

The framework of support that makes it possible for families to care for children with complex care needs safely, in their own homes and in their local school systems, is part of our infrastructure of care.

Some Kids in Long-Term Care Facilities Didn’t See Parents for More Than a Year

Throughout the pandemic, medically fragile children in California’s pediatric long-term care facilities and their parents have endured drastic limits on their ability to see and interact with each other. Some locations barred parents and other caregivers from visiting their children in person for over a year, citing virus safety precautions.

Advocates and parents said they’re concerned that visitation policies at pediatric subacute units during the pandemic may have caused long-term harm to kids.

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