California has multiple programs that provide support to children with complex medical needs and disabilities. But accessing and making use of these programs is a minefield for many families.
Vivian Vasquez and John Hernandez discovered that for themselves after their daughter, Claire, was born with a rare genetic disorder.
Janna Espinoza shudders remembering the day she and her daughter Coraline, then 8, showed up for an appointment in Salinas with their trusted pediatrician and were turned away because the child no longer had the right health insurance.
Coraline, who has cerebral palsy, epilepsy and other serious conditions, relies on a safety-net health insurance program.
For children with complex medical needs, palliative care can offer physical relief and also support to families.
However, systemic failures such as a shortage of places that offer palliative care services for children, and also a shortage of physicians who do this work, lead to long wait times and administrative hurdles. The issues with the system, according to experts, can be fixed.
During the pandemic, California and other states didn’t require people to renew their membership Medicaid, known as Medi-Cal in California.
That changed on April 1, when California began sending out renewal packets once again. Renewals will be sent out in batches, based on the month in which beneficiaries originally applied for Medi-Cal.