Congregate Living Health Facilities are a housing option for ventilator-dependent adults that balance independence with the need for medical care.
The problem is, there are not enough of these homes to care for all the ventilator-dependent adults who would benefit from them. And those homes that do exist mostly don’t accept Medi-Cal patients.
California has multiple programs that provide support to children with complex medical needs and disabilities. But accessing and making use of these programs is a minefield for many families.
Vivian Vasquez and John Hernandez discovered that for themselves after their daughter, Claire, was born with a rare genetic disorder.
California has a variety of programs aimed at supporting the health care needs of children with complex disabilities. But accessing and utilizing these programs is complicated and time consuming.
The California Health Report spoke with several experts and disability advocates about what can be done to ease the burden on families and ensure children with disabilities get the care they need.
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