It’s common for people with disabilities to have trouble accessing health care, but this problem is often overlooked. These challenges can affect people as they move from pediatric to adult care, and also as they age.
I’ve seen how disability and health intersect, both in my academic studies and through my own lived experiences as a person with disabilities.
For families like mine, California’s In-Home Supportive Services program is a lifeline.
But the IHSS lifeline is fraying as the cost of living soars. The IHSS pay rate for caregiving has barely inched above minimum wage in most parts of the state. The pay I receive as my father’s caregiver is not enough to support my family, so I have to work a second full time job.
As of October, the most recent month for which data is available, more than 300,000 older immigrant adults who lack legal residency had enrolled in full Medi-Cal benefits, 30 percent more than the state’s original projection.
State health officials, who had based their estimate on the number of people enrolled in a limited form of Medi-Cal that covers only emergency medical services, don’t know how many additional older Californians are eligible.
Bonnie Burns was shocked into action the first time she learned that seniors were being coerced into Medicare Advantage plans that either didn’t suit their needs, misled them about costs, or lured them with benefits they wouldn’t actually receive.
A health care advocate for 40 years, Burns was outraged that a health insurance option intended to broaden coverage choices for California elders was instead being misused by unscrupulous marketers to seek profits.
Most older adults want to stay in their homes and communities as they age. To do that, many eventually need assistance with routine and personal care.
But 40 percent of older adults and adults with disabilities in California who need help to stay in their homes report receiving either no help at all or not enough.
Hospice care provides physical, mental and spiritual care and comfort for a person with a life expectancy of six months or less.
But fraudulent enrollment in hospice can be life-threatening. Because hospice is for people expected to die, beneficiaries lose access to curative treatment, including medicines, medical equipment and their regular doctors.
While President Barack Obama’s 2010 health reform bill, the Affordable Care Act, greatly expanded insurance access, it excluded undocumented immigrants across the country. This likely contributed to COVID-19’s disproportionate impact on undocumented Californians. Health equity and immigrant rights advocates have been urging California leaders to broaden health coverage for nearly a decade.
Native American seniors are much less likely than other racial and ethnic groups to receive hospice and palliative care, but a new partnership between a Capay Valley tribe in Yolo County and a local hospice provider seeks to change that.
Yolo Hospice is working with Yocha Dehe Wintun Nation to research the challenges that Native American communities face when trying to obtain and plan for end-of-life care.
When done right, hospice care can provide immense comfort to terminally ill patients and their families. But fraud, malpractice, unchecked growth, and lack of effective oversight from the state and federal authorities threaten the wellbeing of California’s hospice patients.
Seniors from all walks of life fall victim to these fraudulent practices, but those with limited English proficiency are especially vulnerable.
Here are a few solutions.
The holiday season is further adding to social isolation and feelings of loneliness many seniors have experienced during COVID-19. Many won’t be able to celebrate the holidays with loved ones and some have lost spouses or other family members to the virus.
The Social Bridging Project and other organizations that serve the elderly are ramping up efforts to reach vulnerable seniors living alone. Solutions include meal deliveries, phone check-ins and crisis hotlines.